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End of Life Issues

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Losing the Living End of Life Care Resources

American Association of Colleges of Nursing (AACN)
End-of-Life Nursing Consortium (ELNEC) - Information on a national education program to improve end-of-life (EOL) care by nurses. www.aacn.nche.edu/elnec

Project on Death in America
Far-ranging investigation of coming to terms with death and dying in contemporary America. www.soros.org/death/

Growth House
Detailed, extensive survey of key concerns about death and dying; describes, rates, and reviews related sites. www.growthhouse.org

Euthanasia Research and Guidance Organization (ERGO)
Compendium of information and latest news on "right-to-die" issues, plus glossary of terms. http://www.finalexit.org/more.html

International Anti-Euthanasia Task Force
Extensive information and background materials on euthanasia, assisted suicide, advance directives, disability rights, and pain control. www.iaetf.org

Not Dead Yet
Disability rights organization that strongly opposes the legalization of assisted suicide. Site contains articles, legal briefs, links, and more. 
http://notdeadyetnewscommentary.blogspot.com/

Compassion in Dying
Provides counseling, emotional support, and information for terminally ill patients about intensive pain management, comfort or hospice care, and rational suicide.
www.thebody.com/cid/cidpage.html

University of Toronto Joint Centre for Bioethics
Information and background materials on end-of-life care. www.utoronto.ca/jcb

University of Texas Medical Branch
Offers a CD-ROM program titled, "Ethics and End-of-Life Care". It is an interactive resource for health care professionals. The interactive case presents an opportunity for immersion into a life-like situation that revolves around a significant healthcare problem. The case reflects the complex array of facts and perceptions that occur when an older woman undergoes emergency hospitalization for a cardiac arrest and is resuscitated. www.multimedialab.com

National Hospice Organization
Founded in 1978, NHO is the oldest and largest nonprofit public benefit organization devoted to hospice care. Site features searchable database to locate hospices throughout the United States. http://www.nhpco.org/templates/1/homepage.cfm

Hospice Foundation of America
Supports the hospice concept through educational programs and grants; site includes online version of Journeys, a newsletter to help individuals deal with grief and loss. www.hospicefoundation.org

Hospice Web
Excellent introduction and overview; full of useful information. www.teleport.com/~hospice

Philadelphia Inquirer Series: Seeking a Good Death
Five-article series addresses the rights of the dying and traces personal stories about end-of-life decision making. www.phillynews.com/packages/end_of_life

Choice in Dying
Explanation of advance directives, with forms for every state available by downloading or mail order. www.choices.org

Eldercare Web
An array of information with focus on economic impacts, such as feasibility of purchasing long-term care insurance. www.elderweb.com
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